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Malaysia's Petronas to take 25% stake in Kitimat, B.C. LNG project

Malaysian oil and gas giant Petronas has announced it intends buying a 25 per cent stake in the LNG Canada project. The plant will initially consist of two LNG processing units with an option to expand the project in the future.
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“These children shouldn’t have to live out life in a wheelchair when they could run, walk, and play,” says Davis, a founder of the Texas SMA Newborn Screening Coalition.

Time is of the essence in treating SMA type 1. A single mutation in the SMN1 gene causes swift and irreversible damage to a baby’s motor neurons, which are located in the brain stem and spinal cord. This damage leads to muscle weakness, and children eventually develop trouble swallowing and breathing.

Davis’s son, Hunter, who is now six years old, had already lost all movement at two weeks of age. Hunter is alive thanks to Spinraza, a breakthrough SMA drug approved in December 2016. Children who have received the drug have made remarkable recoveries. But it must be given through a spinal tap once every four months, for life. It costs a whopping 0,000 for the first year of treatment and 5,000 every year after that.

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And for families such as the Slapes, those illnesses ended in tragedy.

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Cecilia Bernadette Chmura with her husband David Dunn. Chmura's application for medical assistance in dying was denied, and she took her own life. Photos received June 1, 2018. Supplied / Photo from David Dunn / Saskatoon

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